How far would you go for charity?
To celebrate the launch of National EB Awareness Week, last night we watched sixty people walking barefoot over hot coals burning at 800 degrees.
EB (epidermolysis bullosa) is a severe rare genetic skin blistering condition. Children born with EB have extremely fragile skin that blisters at the slightest touch.
A big cheer for the 60 brave firewalkers fundraising tonight in aid of @debraireland #cureEB #releaseyourbutterfly ? pic.twitter.com/4gCGbQIIbR
— Her.ie (@Herdotie) October 1, 2015
To find out more about EB, read our powerful interview with EB Patient Ambassador, Emma Fogarty.
DEBRA Ireland is the national charity to provide patient support services and to drive research into treatments and cures for those living with the genetic skin condition, epidermolysis bullosa (EB).
EB Awareness Day takes place on 23rd October. Text BUTTERFLY to 50300 to donate €4.
Check out all of the highlights from last night’s incredible event in the clip below. Congrats to all involved!
